How I long for a conversation with my Square Peg!

I would love to have a two way conversation with Edward. This is an example of a typical one…..

Me “Edward, did you have a good day at school?’

Edward *says nothing and stares straight ahead…

Me “Edward, did you do counting at school today?”

Edward *says nothing and stares straight ahead….

Me “Edward, do you want porridge or weetabix for breakfast?

Edward *says nothing and stares straight ahead….

So, you get the gist of it…

Recently we have made some progress and he will either answer yes or no to some things but only if it’s something he has a strong opinion on. E.g, ‘Edward shall we cut your nails?’ ‘NOOOOOO!’ Or Edward do you want some Maltesers? ‘YES!’

When Edward was very small we thought that his speech was developing fine, we are a very talkative family and use a wide range of vocabulary so I couldn’t think of a reason why he wouldn’t speak. Then when he got to age of two he just seemed to stop….everyday I kept thinking ‘Tomorrow will be the day when Edward starts talking properly.’ But that never happened, he would babble lots and I knew that was just a normal process in child speech development and eventually the babbling would turn in words, then sentences….but that never happened….

I thought that when he moves to the 2 year olds room in his nursery, that is when his speech will develop as it had done with Matthew. Matthew had only been in the two year olds room for a month and we could have conversations with him….it never happened with Edward

We were referred to Speech and Language Therapy. They were unable to assess him but we had some sessions on communication skills. This was successful to some degree as he was able to make eye contact with us and he learnt to tell us what he wanted.

Edward also does something called Echolalia and this is a part of the autism condition. Simply put, echolalia is repeating words. Again, a normal stage in the development of a child’s speech. This is quite cute when it’s a two year old doing it but when a five year old shouts out the words that strangers passing in the street have said, well it’s a little embarrassing.

When I watch him speak it seems that his brain is working twice as fast as everyone elses and because of this he has difficulty processing what he’s heard and what he has to say and it comes out very jumbled up. He just constantly rambles about random stuff.

For me I find the communication struggle really frustrating and I worry about the problems he might face later in life because he can’t tell me if something has happened to him.

I would love to have a conversation with him and share in his world. Edward world is a very happy place!

3 Little Buttons

14 Comments Add yours

  1. This sounds so hard, I can’t imagine it. He definitely looks happy in that video – and with his maltesers! #ItsOK

    Like

    1. Ahh bless him. It must be so hard, especially if you are a very chatty family…. but hang on in there. Little ones have a way of surprising us 😊 Thanks for joining us for the #dreamteam

      Liked by 2 people

  2. Ah, this brought a tear to my eye. I hope you get what you want one day, a conversation with him. Hugs.
    #itsok

    Liked by 1 person

  3. I really wish that schools would show the cartoon ‘Pablo’ in schools. Have you seen it?
    Each character has a different autistic trait. For example the llama does echolalia.
    I have a few friends with autistic children and I think the cartoon is such a good way to increase autistic empathy.

    Like

    1. I haven’t actually seen that yet but it sounds really good. Xx

      Like

      1. It’s on CBeebies. I believe all members of the cast are on the autistic spectrum. There’s an article about it on the national autistic society website.

        Liked by 1 person

  4. I can’t even imagine what you must go through. And I must shift my position on my own kids since they just choose not to talk or converse due to TV, friends, eachother…. Hold him tight. You will find other ways to talk. ❤ #itsok xoxo

    Like

  5. Reading this broke my heart; I can’t even begin to imagine how it must feel. I hope your wishes come true and you and Edward will be able to share stories and precious moments together. And as Lisa mentioned in the above comment, you will find other ways to communicate. Sending hugs.
    Thank you for sharing this with us at #itsok

    Liked by 1 person

    1. Thank you. It’s probably the most frustrating aspect of autism because he can’t tell me what’s wrong or if somethings happened to him during the day. Xx #ItsOK

      Like

    1. Aw thank you so much for this! It means a lot! Xx

      Like

  6. twicemicrowavedtea says:

    This must be so hard for you all. Being able to have a conversation my daughter is something I’ve always just take for granted. I can’t begin to imagine how you feel. Hopefully in time he will find his own way of communicating with you. #dreamteam

    Liked by 1 person

    1. Thank you. He’s steadily getting better at communicating but only if he wants something.

      Liked by 1 person

  7. I love that you shared this. I am trying to understand autism because more and more children live with it. My 4 year old grandniece does. This post helps me understand what my niece, my grandnieces mom, feels and helps me be able to support her more. Thank you so much.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s